The Royal Children's Cystic Fibrosis Research Trust
Raising funds for research into cystic fibrosis
Area: Based at The Royal Children's Hospital, Parkville
THE STORY SO FAR
The Royal Children’s Cystic Fibrosis Research Trust was formed in 2000 by a group of parents in conjunction with Associate Professor Philip Robinson, Director of the RCH's CF Unit. The group seeks to fund research into cystic fibrosis (CF), a life-threatening genetic disorder that severely affects lung function and digestion.
Research projects are based at The Royal Children’s Hospital (RCH), one of the world's leading paediatric teaching hospitals, which has more than 300 patients under its care.
As membership of the Trust is entirely voluntary, every dollar raised goes directly to research.
Since 2000, the Trust has paid the salaries of 11 doctors to undertake full-time research into aspects of CF.
It has also funded the trips of three internationally recognised CF expects who have shared their knowledge and best practice with RCH medical professionals.
WHAT WE ARE WORKING ON
In 2008 the CF Research Unit at the RCH, in conjunction with the CF Unit at the Princess Margaret Hospital in Perth, joined together to form the AREST CF Group. The AREST (Australian Respiratory Early Surveillance Team) CF Group will spend the next 3 to 5 years conducting innovative and wide-ranging research projects into the assessment and management of early lung disease in infants with cystic fibrosis.
President: Peter Hader
Secretary: Silvia Pozzuto
Treasurer: Leo Vargiu
(03) 9345 6259