Caring friends of cystic fibrosis
Supporting Services for Cystic Fibrosis Patients at The Royal Children’s Hospital
Area: Western suburbs
THE STORY SO FAR
Caring Friends of Cystic Fibrosis Auxiliary believe that there are many cystic fibrosis areas within The Royal Children's Hospital that are badly in need of funds, and it was on this basis that they were formed in 2006. The value and importance of CF research cannot be undervalued and Caring Friends of CF Auxiliary make this possible with their fundraising endeavours.
Their ongoing craft stalls at the RCH, supplemented by outside fundriasing activities, bring significant amounts of donated funds each month.
WHAT WE ARE WORKING ON
Caring Friends of Cystic Fibrosis, where possible, make an annual commitment to fund major cystic fibrosis research projects which, although so far not achieving the ultimate goal of finding a cure, have certainly helped improve the quality of life for cystic fibrosis patients.
2014 started with the Auxiliary providing a major item of equipment – a Portable Ultra-Sound Machine – to the RCH’s Department of Anaesthesia and Pain Management. This equipment is used in Pre and Post Operative Anaesthesia and Pain Management for CF patients, to guide needle insertion in vascular access procedures, with positive resulting reduction in patient trauma.
The Auxiliary has also purchased a significant amount of equipment for the RCH’s Physiotherapy Department. This equipment is aimed at enhancing breathing activities and airway clearance, physical activity and exercise for respiratory inpatients, many of which are CF patients.
Other areas funded are assisting families whose children are admitted unexpectedly for treatment. This takes the form of emergency food/beverage vouchers and/or fully packed toilet bags which are distributed by the CF co-ordinators to ensure they help those most in need. They are also continuing their ongoing supply of chocolates, sweets, textas, pens, pencils, crayons, colouring sheets and stickers for CF children to use and enjoy whilst on the wards.
President: Pat Borcich
Vice President: Yvonne Felton
Secretary/Treasurer: Daryl Gunn
0417 669 291